MoyaMoya.com Message Board

Moyamoya.com
Internet support for those diagnosed with MoyaMoya Disease

Message Board Posts from February - July 2003

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Patrick's surgery - Margaret Clem 21:04:44 07/30/03 (0)
Patrick's surgery - Margie Myers 20:15:06 07/30/03 (0)
my son is having surgery - rick 16:26:54 07/29/03 (5)
- yeah right - Patrick Martin 14:29:50 08/08/03 (0)
- Pat's Surgery - Aunt Dottie 14:59:18 07/30/03 (0)
- Thoughts for Rick and Patrick - Angela and Drew Lucas 13:34:30 07/30/03 (0)
- Nerves - Rena 09:05:29 07/30/03 (0)
- Sorry your son is nervouse. - Mary 18:14:46 07/29/03 (0)
Dr. Steinberg not the 1st surgeon - Tobey 15:20:39 07/27/03 (1)
- Dr. Steinberg - Jeri 18:57:53 07/27/03 (0)
Response to Lisa - Julia 11:58:43 07/26/03 (1)
- E-mail - Lisa 01:58:59 07/30/03 (0)
Searching for Alyssa and mother Anette. - Annica 13:14:21 07/22/03 (0)
just an update - Rena 08:36:40 07/22/03 (1)
- Thanks for the update - DJ 12:04:37 07/23/03 (0)
still having seizures after 2nd surgery! - MISHELL 22:19:46 07/21/03 (0)
questions re: surgery in CA - Elaine 15:52:53 07/21/03 (2)
- Comfort Inn - DJ 12:00:53 07/23/03 (0)
- CA - Rena 08:26:43 07/22/03 (0)
dilantin - doug wang 22:58:29 07/19/03 (0)
ms and moya moya - doug wang 11:00:35 07/18/03 (5)
- ms and moya moya - doug wang 13:02:06 07/20/03 (2)
  - Doug - Lisa 00:02:25 07/21/03 (1)
    - lisa - doug wang 12:31:55 07/21/03 (0)
- MS - Lisa 02:45:31 07/19/03 (0)
- misdiagnosis of possible ms - Jessie Ruiz 22:59:10 07/18/03 (0)
need answers - Krystal 23:50:18 07/16/03 (1)
- Krystal - Lisa 00:12:10 07/21/03 (0)
cousin with MM and Aneurysms...need advice! - Paula 23:59:22 07/14/03 (4)
- Surgeon in Chicago area - Tobey Elovitz 16:32:51 07/19/03 (0)
- Drs. in Chicago - Lisa 23:31:34 07/17/03 (0)
- Paula - Carol 15:00:14 07/16/03 (1)
  - mm and aneurysms... - Paula 22:06:45 07/16/03 (0)
question on orthopedic surgery and MM - Barbara 14:24:52 07/14/03 (0)
Burr Holes - Michelle Waring 16:46:51 07/13/03 (0)
so many new friends! - kathy van meter 16:40:21 07/12/03 (3)
- I remember you, too.. - Linda..DJ's Mom 10:14:16 08/12/03 (0)
- Of course I remember! - DJ 21:24:20 07/16/03 (0)
- Kathy and Brian - Carol 15:13:13 07/15/03 (0)
MOYA MOYA BYPASS SURGERY - Julia 01:27:46 07/12/03 (3)
- Julie - Lisa 23:56:49 07/17/03 (2)
  - Moya Moya Bypass - Julia 11:52:13 07/26/03 (0)
  - Moya Moya Bypass - Julia 11:46:47 07/26/03 (0)
where do we go? - Elaine Krause 16:54:03 07/11/03 (3)
- We live far from california too!!!! - Nancy 09:52:28 07/13/03 (2)
  - I'm Going - Elaine 19:32:54 07/16/03 (0)
  - Mandy - Carol 14:58:14 07/15/03 (0)
no MRI before surgery???? - mishell 20:34:59 07/09/03 (2)
- MRI - Lisa 00:04:01 07/18/03 (0)
- MRI - Carol 14:50:05 07/16/03 (0)
head sensitivity - Rena 20:11:55 07/06/03 (4)
- Head Sensitivity - Carol 14:53:06 07/16/03 (0)
- Head sensitivity - Nancy 10:08:13 07/13/03 (1)
  - Thanks Nancy - Mary 10:52:03 07/16/03 (0)
- Head Sensitivity - Mary 12:02:07 07/07/03 (0)
a question for d.j. - mishell 16:52:50 07/04/03 (1)
- Yes Mishell - DJ 06:32:44 07/09/03 (0)
We're home - Rena 23:14:28 07/02/03 (2)
- Tyler - Carol 14:56:16 07/16/03 (0)
- Glad it's over... - Marlene 01:37:56 07/03/03 (0)
Rena and Tyler? - DJ 21:18:40 06/27/03 (3)
- The second surgery - Rena 23:59:36 06/27/03 (2)
  - not good news - Rena 20:16:56 06/28/03 (1)
    - So sorry to hear that - DJ 21:37:04 06/30/03 (0)
not enough knowledge - Sandy 15:21:12 06/27/03 (2)
- Sandy - Carol 15:06:16 07/16/03 (0)
- Hi Sandy - DJ 21:09:20 06/27/03 (0)
MM Neurosurgeon in Miami Area? - Mir 23:57:05 06/26/03 (2)
- Doctors In Miami For Moyamoya - Karen 21:28:10 07/22/03 (0)
- Not sure about Miami... - DJ 21:16:56 06/27/03 (0)
how's it going? - uncle ron 08:33:07 06/22/03 (1)
- Hey Ron! - DJ 12:14:24 06/24/03 (0)
One down - Rena 19:30:32 06/20/03 (2)
- Excellent news! - DJ 23:27:34 06/20/03 (0)
- Thank God! - Marlene 20:14:33 06/20/03 (0)
Symtons Back - Michelle Waring 16:36:57 06/17/03 (7)
- Not necessary to get a japanese doctor or go to japan - Nancy North 18:11:17 06/18/03 (0)
- Japanese Doctor - june ohashi 14:46:14 06/18/03 (5)
  - Same as previous - Nancy 18:31:02 06/18/03 (3)
    - thank you - june ohashi 16:55:05 06/19/03 (1)
      - Doctors in Japan - Nancy 11:15:24 06/30/03 (0)
    - I'm not a Kook ! - Nancy 18:36:24 06/18/03 (0)
  - Japan or japanese doctor not necessary - Nancy North 18:17:09 06/18/03 (0)
Tyler and Rena's head shaving party! - DJ 13:41:40 06/14/03 (10)
- GREAT PICTURES - mishell 02:16:20 06/15/03 (0)
- Loved the pictures!!! - Marlene 18:50:43 06/14/03 (0)
- The Pic's - Rena 13:59:45 06/14/03 (2)
  - Good Luck with Tylers surgery - Nancy Mandy 18:23:58 06/17/03 (0)
  - Glad to be able to do it for you Rena! - DJ 12:37:50 06/16/03 (0)
- Pic #5 - DJ 13:45:45 06/14/03 (0)
- Pic #4 - DJ 13:45:04 06/14/03 (0)
- Pic #3 - DJ 13:44:31 06/14/03 (0)
- Pic #2 - DJ 13:44:00 06/14/03 (0)
- Pic #1 - DJ 13:43:25 06/14/03 (0)
Where is DJ? - Annica 10:00:12 06/14/03 (2)
- I'm still here! - DJ 10:13:20 06/14/03 (1)
  - Theres D.J. - Nancy 18:13:24 06/17/03 (0)
did anyone else have seizues - mishell 23:10:00 06/11/03 (2)
- Seizures - Marlene 11:46:04 06/14/03 (0)
- My experience - DJ 10:15:46 06/14/03 (0)
My daughter Cindy - barbara miller 11:23:08 06/08/03 (2)
- Daughter Cindy - Carol 13:52:21 07/19/03 (0)
- Hi Barbara! - Marlene 00:08:50 06/10/03 (0)
Kathleen's 1 year follow up.... - Mary 07:01:14 06/08/03 (1)
- Thanks - Rena 13:14:28 06/08/03 (0)
Kathleen's 1 year follow up.... - Mary 07:00:59 06/08/03 (1)
- Good Luck next week!! - Marlene 00:24:00 06/10/03 (0)
Problems with reading comprehension and MM - Arjun 22:06:18 06/05/03 (1)
- problems with reading - deb 13:49:40 06/06/03 (0)
bipass... - Bev Berkebile 15:40:38 06/05/03 (0)
Canadian specialists - Arjun 09:44:05 06/05/03 (1)
- Canadian specialists - june ohashi 14:33:48 06/18/03 (0)
follow ups - michelle 20:48:23 06/04/03 (0)
Moya Moya surgeons in Europe - Breda 09:21:37 06/03/03 (1)
- European moyamoyasurgeon - Annica 09:54:12 06/14/03 (0)
surgery - jenna 02:31:42 06/03/03 (3)
- Surgery - Rena 08:36:22 06/03/03 (2)
  - surgery - jenna 14:53:06 06/03/03 (1)
    - Good Luck - Rena 13:07:04 06/08/03 (0)
Funds - Rena 18:18:29 05/29/03 (0)
Thanks Nancy.. - Mary 09:28:34 05/23/03 (0)
Help with moyamoya info please - Sandra Page 22:11:47 05/20/03 (0)
Having MoyaMoya The Effects Of Getting Pregnant - Karen 15:41:33 05/18/03 (6)
- Karen - Carol 15:21:28 07/15/03 (1)
  - Carol - Karen 21:12:00 07/22/03 (0)
- Pregnancy - Lisa 00:30:55 05/19/03 (3)
  - Having a baby - Carol Santellana 14:47:04 07/15/03 (0)
  - Thanks - Karen 17:07:47 05/20/03 (1)
    - Thank You DJ - Carol 15:03:47 07/15/03 (0)
Hayley's Surgery - Ricky 14:57:09 05/18/03 (0)
Allyssa - Patty 21:46:14 05/17/03 (1)
- Allyssa's surgery... - Marlene 08:58:03 05/18/03 (0)
Tyer's Surgery - Rena 18:40:55 05/16/03 (5)
- Tylers surgery computers to use - Nancy 18:26:47 05/18/03 (1)
  - Tyler's age - Rena 18:32:30 05/18/03 (0)
- Our prayers were answered... - Marlene 08:56:41 05/17/03 (2)
  - Thrilled And Scared Crapless - Rena 10:58:07 05/17/03 (1)
    - Understandably so, but... - Marlene 00:42:36 05/18/03 (0)
first op - richad spicer 20:48:06 05/15/03 (1)
- Hang in there Richard! - DJ 22:27:23 05/15/03 (0)
Allyssa is having her surgery tomorrow 5-16 - Annette 13:42:39 05/15/03 (3)
- Pray we will... - Marlene 01:42:49 05/16/03 (0)
- Annette - DJ 22:37:40 05/15/03 (0)
- Prayers... - Mary 16:13:19 05/15/03 (0)
Tests and more... - DJ 23:16:19 05/13/03 (0)
Mandy / DJ - Jeannine 14:16:15 05/12/03 (1)
- Incredible!!! - DJ 23:04:29 05/13/03 (0)
Nancy just saw your response.... - Mary 20:00:45 05/11/03 (1)
- SPLINT FOR KATHLEEN - NANCY 18:21:10 05/13/03 (0)
moyamoya what else - Tom Gallucci 10:51:13 05/11/03 (0)
Hey Stanford... - Marlene 23:16:10 05/09/03 (3)
- I'm still here!! - DJ 04:04:35 05/10/03 (2)
  - D.J. IN CALIFORNIA - NANCY 13:10:13 05/10/03 (0)
  - Three MM'ers... - Marlene 09:45:03 05/10/03 (0)
reoccurance moyamoya - deb 14:38:39 05/09/03 (2)
- reoccurance - Mary 11:29:22 05/13/03 (0)
- I can only speak for myself.... - DJ 04:09:16 05/10/03 (0)
Hannah's surgery - Kim 17:42:13 05/06/03 (4)
- Great news! - Mary 09:14:34 05/07/03 (3)
  - Has Anyone HAd Both Sides Done At The Same Time? - Annette 13:51:29 05/07/03 (2)
    - Both Sides at the same time - Brian 19:46:22 09/09/03 (0)
    - Surgery Next Week - Ricky 17:48:43 05/07/03 (0)
Medicaid - Shannon 19:09:03 05/04/03 (4)
- Medicaid - Lisa 01:08:39 05/07/03 (1)
  - Medicaid - Shannon 22:10:52 05/07/03 (0)
- Medicaid - Rena 08:38:36 05/05/03 (1)
  - Medicaid - Shannon 23:10:20 05/05/03 (0)
MORE PROBLEMS FROM MY MOYAMOYA - Elaine Calvert 20:54:35 05/02/03 (1)
- Hi Elaine! - DJ 22:52:42 05/05/03 (0)
So many questions...so few answers! - Shana Turner 19:43:31 05/01/03 (3)
- So Sorry....... - Mary 11:27:22 05/02/03 (0)
- Shana, I'm so sorry... - DJ 21:06:07 05/01/03 (1)
  - Thank you! - Shana Turner 10:48:22 05/04/03 (0)
DJ... - Marlene 23:21:28 04/28/03 (1)
- Wow Marlene! - DJ 07:00:58 04/29/03 (0)
Headaches - Rena 14:57:11 04/28/03 (2)
- My headaches - DJ 22:51:50 04/28/03 (1)
  - Insurance - Rena 08:02:11 04/29/03 (0)
Sister with moyamoya - Helen Rivera 12:29:18 04/28/03 (3)
- Lisa can help.... - DJ 22:52:52 04/28/03 (0)
- Helen... - Marlene 15:45:01 04/28/03 (0)
- doctors - Dawn 13:43:53 04/28/03 (0)
WE'RE FINALLY HOME!!!!!!!!! - Nancy 10:58:24 04/27/03 (3)
- We miss you! - Mar 15:42:43 04/27/03 (0)
- Great news! - Mary 12:16:30 04/27/03 (1)
  - Kathleens Rehab....responding to Mary - Nancy 18:00:00 05/04/03 (0)
Our 3 year old daughter Allyssa will have surgery May 16th - Annette 15:58:02 04/26/03 (5)
- Your family will be our families thoughts. - Shana Turner 11:10:17 05/04/03 (2)
  - Thanks for your e-mail! - Nancy 17:24:04 05/04/03 (1)
    - Thank you for sharing more of your story. - Shana Turner 20:55:00 05/05/03 (0)
- Pray I will! - Elise 09:24:12 04/28/03 (0)
- Annette and Family - Marlene 18:42:50 04/26/03 (0)
for a friend - Shannon Sawyer 22:06:52 04/24/03 (3)
- Ask Away! - Mary 21:47:04 04/25/03 (1)
  - doctor info - Holly Tang 11:40:54 05/27/03 (0)
- Hi Shannon! - DJ 00:33:54 04/25/03 (0)
tremmors - missy 00:16:30 04/24/03 (2)
- Doesn't sound good Missy! - DJ 01:43:36 04/24/03 (1)
  - You are not Paranoid! - Mary 14:24:18 04/24/03 (0)
Hannah, Kim, and Douglas - DJ 22:46:10 04/22/03 (3)
- Hannah - Dawn 14:26:37 04/24/03 (1)
  - Greaat news! - Mary 15:49:05 04/24/03 (0)
- Thinking about Hannah... - Mary 08:32:45 04/23/03 (0)
waiting - Rena 17:18:28 04/21/03 (1)
- Rena - Mary 18:57:52 04/21/03 (0)
surgery on 4/22 - Hannah's Mom 15:05:19 04/19/03 (7)
- Kim and Douglas - DJ 13:07:50 04/21/03 (0)
- Hayley misses you - Dawn Hayley 08:09:01 04/21/03 (0)
- Prayers for Hannah - mg12061 10:16:54 04/20/03 (2)
  - Hannah - Mary 08:11:42 04/21/03 (1)
    - oops! - Dawn 08:12:51 04/21/03 (0)
- Our prayers are with you... - Marlene 07:17:26 04/20/03 (0)
- Good Luck - Ricky 19:23:19 04/19/03 (0)
Wishes to our Moyamoya Family... - Marlene 09:48:22 04/18/03 (0)
Hannah Veronesi - Dawn 12:32:43 04/17/03 (0)
me and my familey - richard spicer 17:45:58 04/15/03 (3)
- opp - richard spicer 04:16:46 04/18/03 (0)
- Richard... Heredity..... - Mary 16:54:41 04/16/03 (0)
- Hi Richard - Lisa 14:41:45 04/16/03 (0)
RE; Hospital stay - Dawn 18:17:05 04/14/03 (2)
- Parents - Ricky 23:26:57 04/14/03 (1)
  - hospital stay - dawn 12:08:13 04/17/03 (0)
inherited - sheila 07:24:29 04/13/03 (4)
- Sheila and Sheryl - Rena 10:42:27 04/13/03 (3)
  - Herditary - Lisa 14:51:49 04/16/03 (2)
    - Please let us know. - Shana Turner 11:49:50 05/04/03 (0)
    - MRA - missy 23:21:28 04/23/03 (0)
Inherited? - Sheryl 21:18:34 04/12/03 (0)
a little good news?????? - Rena 22:35:44 04/10/03 (1)
- Awesome! - DJ 11:24:27 04/11/03 (0)
Referal? - Rena 18:26:25 04/09/03 (2)
- Medicaid - Lisa 14:51:57 04/10/03 (1)
  - thanks - rena 08:48:41 04/11/03 (0)
CO Doctors - Rena 21:36:03 04/08/03 (0)
Tyler and a Question - Rena 08:48:29 04/08/03 (5)
- Hair - DJ 19:30:55 04/08/03 (4)
  - hair - Rena 21:30:27 04/08/03 (3)
    - Hair cutting - Carol 14:53:33 07/15/03 (0)
    - LOL, Sound familiar Mark? - DJ 22:41:00 04/08/03 (1)
      - Way COOL! - Rena 23:15:35 04/08/03 (0)
update on Tyler - Rena 09:23:22 04/03/03 (3)
- insurance game - ed 20:28:08 04/10/03 (0)
- How's it going Rena? - DJ 18:02:57 04/07/03 (0)
- Medicaid Game - Ricky 19:35:14 04/03/03 (0)
update on mandy - Ed 22:57:09 04/02/03 (3)
- ritalin - missy 23:35:29 04/23/03 (0)
- Amber/weakness - Joyce Stierwalt 08:48:45 04/11/03 (0)
- She's gonna be a track star! - DJ 07:49:15 04/03/03 (0)
Taking a breath? - DJ 07:38:22 04/02/03 (2)
- Amber another trip to ER - Joyce Stierwalt 10:40:39 04/02/03 (1)
  - The ear thing... - DJ 07:44:18 04/03/03 (0)
Question??? - Elise 08:30:15 03/28/03 (1)
- My daughter has Down Syndrome too - Mary 16:30:49 03/28/03 (0)
my neice, my son - missy 17:48:14 03/27/03 (8)
- hereditory - richard spicer 07:11:37 04/13/03 (1)
  - follow-up - missy 22:59:27 04/23/03 (0)
- ADVICE ON MOYAMOYA AND SEIZURES - MARK AND NANCY 22:43:38 03/29/03 (1)
  - Mandy and her progress - Joyce Stierwalt 10:56:47 04/02/03 (0)
- Welcome Missy! - DJ 00:51:23 03/28/03 (2)
  - Missy - Joyce Stierwalt 10:55:53 03/28/03 (1)
    - wait to clam down - missy 23:10:12 04/23/03 (0)
- Hi Missy - Lisa 21:31:27 03/27/03 (0)
Tyler - Rena 09:58:50 03/25/03 (6)
- Tylers moyamoya - Joyce Stierwalt 22:46:12 03/25/03 (1)
  - tyler - Rena 09:22:48 03/26/03 (0)
- Wonderful news Rena! - DJ 22:25:30 03/25/03 (2)
  - Amber moyamoya - Joyce Stierwalt 11:07:33 03/28/03 (0)
  - Amber moyamoya - Joyce Stierwalt 23:04:59 03/25/03 (0)
MOYA-MOYA - EDNA MOJICA 09:45:04 03/25/03 (1)
- Welcome Edna - DJ 22:13:09 03/25/03 (0)
Mandy - Kevin 22:48:05 03/24/03 (0)
hello - Ed 13:51:49 03/22/03 (1)
- Good to hear from you Ed! - DJ 21:48:19 03/23/03 (0)
New layout on the site - DJ 12:54:33 03/22/03 (0)
My angiogram pictures - DJ 11:25:22 03/22/03 (2)
- Collateral bloodflow - DJ 11:34:17 03/22/03 (0)
- Post op picture - DJ 11:30:26 03/22/03 (0)
Questions about prognosis - Annica 03:35:56 03/22/03 (3)
- Pediatric prognosis - DJ 12:11:53 03/22/03 (2)
  - Long-term prognosis - jv 02:11:10 03/24/03 (1)
    - A recent study - jv 03:43:57 03/24/03 (0)
MANDYS PROGRESS AT MOSS REHAB - NANCY NORTH 23:06:53 03/21/03 (0)
Tyler Update - Rena 11:15:19 03/21/03 (2)
- Keep Pushing - Douglas Veronesi 11:45:44 03/21/03 (1)
  - everyones support - Rena 11:54:20 03/21/03 (0)
Moyamoya Logo - Douglas Veronesi 10:57:42 03/21/03 (3)
- Logo - Dawn Hayley 17:45:32 03/22/03 (0)
- Logo - Mary B 12:22:28 03/22/03 (0)
- Logo - Rena 21:48:31 03/21/03 (0)
Just Me Rambling - Douglas Veronesi 09:05:54 03/19/03 (7)
- One sided surgery - Elise 20:36:52 03/24/03 (0)
- Doug-complications - Lisa 23:34:09 03/23/03 (3)
  - What I wanted to say... - DJ 01:56:34 03/24/03 (2)
    - Small TIA - jv 03:54:09 03/24/03 (1)
      - I would say so... - DJ 07:58:55 03/24/03 (0)
- surgery - sandi lawler 02:50:50 03/21/03 (0)
- Good to hear Douglas! - DJ 22:46:44 03/20/03 (0)
Tests and long-term benfits of surgery - Lisa 03:02:51 03/19/03 (5)
- JV-follow-up study - Lisa 16:53:44 03/20/03 (4)
  - JV and Lisa - DJ 22:25:09 03/20/03 (3)
    - Lisa and DJ - jv 02:11:46 03/21/03 (1)
      - Good deal - DJ 08:01:38 03/21/03 (0)
    - Angiogram picture - DJ 22:29:03 03/20/03 (0)
fatigue with moya moya patients - sandi lawler 00:28:19 03/19/03 (4)
- My experience - DJ 00:19:22 03/21/03 (0)
- Fatigue - Lisa 03:06:07 03/19/03 (1)
  - fatigue - sandi lawler 03:00:48 03/21/03 (0)
- fatigue - Jason 00:57:34 03/19/03 (0)
Amber update - Amber Wingo 23:50:22 03/17/03 (5)
- ambers home - MANDY mark nancy and connor 20:56:48 03/20/03 (1)
  - Nancy,Mark ED and Mandy - Joyce Stierwalt 23:16:06 03/25/03 (0)
- Amber - DJ 01:01:47 03/18/03 (2)
  - Texas bound - Joyce Stierwalt 20:03:06 03/19/03 (1)
    - Awesome! - DJ 19:35:19 03/20/03 (0)
Mandy - carl jen 17:38:28 03/17/03 (0)
Questions for DJ - Shelby 11:29:13 03/15/03 (18)
- Confused 38... - jv 01:51:43 03/17/03 (11)
  - one sided MM - Jason 00:47:53 03/19/03 (8)
    - one sided mm - Michelle 02:23:42 05/31/03 (0)
    - Operation vs. conservative - jv 02:12:44 03/19/03 (6)
      - Oh, Contrare JV.. - Marlene 08:22:08 03/19/03 (5)
        
        Marlene - jv 08:52:31 03/19/03 (4)
        
        ok, found it... - jv 09:00:06 03/19/03 (3)
        
        long term benefits - Marlene 09:45:59 03/19/03 (2)
        
        Mandy - Joyce Stierwalt 19:49:15 03/19/03 (1)
        
        Joyce and Family... - Marlene 23:54:44 03/19/03 (0)
  - JV - Lisa 02:57:28 03/17/03 (1)
    - Lisa - jv 01:28:27 03/18/03 (0)
- Answers... - DJ 15:52:17 03/16/03 (5)
  - DJ - Shelby 21:24:02 03/16/03 (4)
    - Shelby - Lisa 02:22:50 03/17/03 (2)
      - Lisa and JV - Shelby 15:47:03 03/17/03 (0)
      - Lisa - Shelby 15:33:15 03/17/03 (0)
    - Hi again Shelby - DJ 01:15:43 03/17/03 (0)
Questions for DJ - Shelby 11:28:57 03/15/03 (0)
mandy - ed 23:04:06 03/13/03 (2)
- Mandy - Joyce Stierwalt 15:30:29 03/18/03 (0)
- Ed... - DJ 00:53:55 03/14/03 (0)
My 11-year-old Tyler - Rena 12:14:20 03/13/03 (10)
- My prayers are with you - Douglas Veronesi 19:40:58 03/19/03 (0)
- Hi Rena and Tyler - Elise 09:50:09 03/15/03 (0)
- Rena and Tyler - DJ 01:12:23 03/14/03 (7)
  - 11 YEAR OLD TYLER - MARK(MANDYS DAD) 20:56:03 03/16/03 (0)
  - Tyler - Rena 10:06:28 03/14/03 (5)
    - Clarification - DJ 11:04:54 03/14/03 (4)
      - Tyler - Rena 11:35:08 03/14/03 (3)
        
        Tyler... - Marlene 14:51:03 03/14/03 (2)
        
        Tyler - rena 16:05:14 03/14/03 (1)
        
        Tyler-Moyamoya - Joyce Stierwalt 15:19:37 03/18/03 (0)
Amber's surgery - Denise 11:55:40 03/13/03 (0)
Thank you everyone - Tina Wingo 22:46:41 03/12/03 (0)
Amber's second surgery - DJ 21:42:35 03/12/03 (5)
- Get Well Soon - Douglas Veronesi 08:45:40 03/13/03 (0)
- Way to go, Amber!!! - Linda 08:28:43 03/13/03 (0)
- Thank you everyone - Tina Wingo 22:42:32 03/12/03 (2)
  - my great niece Amber - Becky Bruce 00:31:46 03/13/03 (0)
  - my great niece Amber - Becky Bruce 00:30:33 03/13/03 (0)
Hello - Hannah Veronesi 19:19:01 03/12/03 (5)
- tHINKING OF YOU - Mary b 20:25:01 03/13/03 (0)
- Hi Cutie! - Dawn T 09:03:55 03/13/03 (0)
- Daddy Loves You - Douglas Veronesi 08:54:13 03/13/03 (0)
- Hi Hannah! - Marlene 00:13:47 03/13/03 (0)
- Hi Hannah! - DJ 21:32:27 03/12/03 (0)
Mandy, Amber, and Hannah - Jeannine 19:43:49 03/11/03 (0)
Hurry Home - Lyn 17:20:06 03/11/03 (0)
Where are the others? - DJ 00:38:56 03/11/03 (1)
- We want to help - Douglas Veronesi 12:08:47 03/11/03 (0)
Phone call... - DJ 00:27:46 03/11/03 (0)
MANDY - ALVETTA 17:09:04 03/10/03 (1)
- Stay Strong - Mel 20:05:22 03/10/03 (0)
We Love You - mandy 16:02:58 03/10/03 (0)
Thank you - dj 15:51:08 03/10/03 (0)
Amber update - Joyce Stierwalt 12:58:49 03/10/03 (3)
- Absolutely .. - Linda 15:06:51 03/10/03 (0)
to amanda - uncle nunsy 20:50:49 03/09/03 (3)
- I agree with Paul and Mel - Vicki 20:19:04 03/10/03 (0)
- I have to agree with Paul - Mel 20:11:24 03/10/03 (0)
- Mandy - Paul 18:09:35 03/10/03 (0)
UPDATE ON MANDY! 3/09/2003 - MARKNANCY NORTH 18:07:34 03/09/03 (2)
- Awesome! - Elise 08:34:59 03/10/03 (0)
- Great news!!! - Linda 07:51:57 03/10/03 (0)
Hannah's Angiogram - Douglas Veronesi 16:22:56 03/08/03 (12)
- Hannah V - Dawn Terry 15:56:37 03/10/03 (1)
  - Thank you - Douglas Veronesi 12:10:30 03/11/03 (0)
- BCH and Moyamoya Surgery for Hannah - Denyse 10:26:51 03/10/03 (0)
- HANNAH'S MOYAMOYA - MARK NANCY 18:26:03 03/09/03 (1)
  - Keep the faith! - Elise 08:31:22 03/10/03 (0)
- We're here... - DJ 13:47:51 03/09/03 (0)
- Doug great news... - Mary 08:00:44 03/09/03 (0)
- Doug, Kim and Hannah... - Doug, Kim and Hannah... 07:38:20 03/09/03 (3)
  - oops..how'd I do that? - Marlene 07:43:40 03/09/03 (2)
    - Cute .. - Linda 17:10:07 03/09/03 (1)
      - ;-) - Marlene 22:33:26 03/09/03 (0)
- Hannah web family - Jamie 00:40:48 03/09/03 (0)
update on mandy - ed 18:41:28 03/07/03 (1)
- It was my pleasure Ed - DJ 15:53:32 03/08/03 (0)
mandy and our moyamoya family - ron 17:24:28 03/07/03 (0)
pictures - Denise 07:39:11 03/07/03 (2)
- pictures - June 10:55:38 03/07/03 (0)
- picture... - Marlene 08:30:33 03/07/03 (0)
3 Moyamoya'ers in one picture! - DJ 01:27:18 03/07/03 (11)
- Hope - Alison 10:08:46 03/12/03 (0)
- Amber - Carol Harman 09:20:48 03/09/03 (0)
- Speedy Recovery - Doug Veronesi 16:10:58 03/08/03 (0)
- 3 Angels - Jamie 12:11:03 03/07/03 (0)
- Picture - Christine 06:12:07 03/07/03 (0)
- Happy, healthy tears - Linda 02:27:17 03/07/03 (5)
  - Sorry .. - Linda 11:29:56 03/07/03 (0)
  - Linda... - Marlene 10:53:15 03/07/03 (3)
    - Oh, Marlene .. - Linda 16:48:45 03/07/03 (2)
      - LOL ;-) - Marlene 01:22:11 03/08/03 (0)
      - Yep - DJ 00:01:59 03/08/03 (0)
Amber - Jamie 00:06:50 03/07/03 (1)
- Amen! - Marlene 00:19:31 03/07/03 (0)
DJ - Fran 00:03:58 03/07/03 (0)
love from your brother - concon 22:05:54 03/06/03 (0)
Mandy, i miss you!!! - Vanessa 17:45:27 03/06/03 (0)
A special THANKS! - Lyn 17:37:00 03/06/03 (0)
Way to go Mandy Amber - Jeannine 17:23:47 03/06/03 (0)
Thank you DJ - Robyn 16:17:26 03/06/03 (0)
MANDY - OXFORD VALLEY 10:18:09 03/06/03 (0)
mandy and amber - Renee 09:37:47 03/06/03 (0)
mandy and amber's surgery - denise 07:48:11 03/06/03 (1)
- Mandy Amber... - Marlene 09:45:22 03/06/03 (0)
Another Amber Update... - DJ 05:09:02 03/06/03 (0)
ANOTHER MANDY UPDATE! - DJ 21:57:16 03/05/03 (2)
- Keep it up Mandy :) - Christine 07:16:46 03/06/03 (0)
- :-) - DJ's Mom 00:16:43 03/06/03 (0)
Hello and the Best of Luck from Pennsylvania - Kathy Joe and Natalie 21:54:41 03/05/03 (0)
Mandy and Ambers's surgeries today... - DJ 21:52:27 03/05/03 (1)
- P.S. - DJ 22:01:34 03/05/03 (0)
MANDY - Melissa 16:08:40 03/05/03 (0)
pictures - denise 08:19:21 03/05/03 (2)
- Thanks for the pictures Dj - June 09:38:44 03/05/03 (0)
- mady's pictures - renee 09:19:13 03/05/03 (0)
love - yvonne 23:26:44 03/04/03 (1)
- Yvonne - DJ 01:50:42 03/05/03 (0)
Doug and Kim... - DJ 21:21:27 03/04/03 (0)
Update on Mandy and Amber - DJ 21:02:49 03/04/03 (12)
- cant sleep - email from your bro 03:09:36 03/05/03 (0)
- Amber... - Marlene 02:15:32 03/05/03 (0)
- Mandy, Ed, and DJ - DJ 21:17:14 03/04/03 (1)
  - Great pictures!!! - Linda Davis 02:57:44 03/05/03 (0)
- Mom, Dad, Mandy and Ed - DJ 21:13:16 03/04/03 (0)
- Mandy, Ed, and Nancy - DJ 21:11:07 03/04/03 (1)
  - Mandy and her family - Kim Manners 08:07:39 03/06/03 (0)
- Mandy and Ed - DJ 21:07:10 03/04/03 (4)
  - Mandy Ed - Linda Davis 02:53:15 03/05/03 (0)
  - Marlene - DJ 21:26:14 03/04/03 (2)
    - Mandy, my twin sister Marlene - Peggy Jones 03:00:28 03/05/03 (0)
    - Thank you DJ... - Marlene 01:59:58 03/05/03 (0)
Amber and Mandy .. Surgery - Linda Davis 13:59:34 03/04/03 (4)
- Hi Amber, Mandy, and girl's family! - Kimmi 07:34:45 03/05/03 (0)
- mandy - Ed 20:49:49 03/04/03 (2)
  - :-) - Linda Davis 02:48:47 03/05/03 (0)
  - Ah Hah! - DJ 23:02:01 03/04/03 (0)
Mandy and Amber - DJ 10:55:55 03/02/03 (0)
post-op. visit?? - Mary 07:26:37 03/01/03 (0)
update on mandy - Ed 20:37:08 02/28/03 (0)
Mandy, One down...one to go... - Marlene 20:07:13 02/28/03 (1)
- I am glad things went well. - Douglas Veronesi 12:24:10 03/03/03 (0)
Hannah Veronesi - Douglas Veronesi 09:28:27 02/28/03 (0)
Update on Mandy - DJ 23:54:30 02/27/03 (2)
- Good News - Doug Veronesi 09:31:16 02/28/03 (0)
- Mandy - Mary B 09:30:54 02/28/03 (0)
Thoughts and prayers for Mandy's surgery... - DJ 00:03:54 02/26/03 (8)
- Sounds - Mary B 09:38:36 02/28/03 (1)
  - Mary B-sounds - Lisa 19:02:36 03/03/03 (0)
- My prayers are with you..... - Doug Veronesi 07:37:01 02/27/03 (0)
- Mandy - Marlene 01:43:01 02/26/03 (4)
  - Mandy family - Lisa 14:27:25 02/26/03 (3)
    - Mandy's first surgery... - Marlene 00:53:00 02/27/03 (2)
      - Great news!!! - Mary 21:12:02 02/27/03 (0)
      - Wonderful News Marlene!!! - DJ 02:07:21 02/27/03 (0)
9 year old daughter with moyamoya - Kim Veronesi 19:31:31 02/25/03 (11)
- I am Kim's Husband - Douglas Veronesi 07:32:49 02/27/03 (6)
  - Hi Doug I know several parents with MM - Elaine Calvert 19:48:18 03/16/03 (0)
  - Nice to meet you Doug! - DJ 00:11:46 02/28/03 (0)
  - Douglas - Mary 21:44:52 02/27/03 (0)
  - Douglas - Mary 19:59:29 02/27/03 (0)
  - Veronesi Family - Lisa 15:00:21 02/27/03 (1)
    - Uh huh - DJ 23:58:35 02/27/03 (0)
- Moya Moya in Boston - Mary 11:38:12 02/26/03 (0)
- Kim and Hannah - Marlene 02:40:09 02/26/03 (0)
- Kim - Lisa 01:30:38 02/26/03 (0)
- Hi Kim! - DJ 00:33:46 02/26/03 (0)
DJ I read your story again........ - Mary 11:22:08 02/23/03 (7)
- Tremors - Lisa 13:53:44 02/23/03 (6)
  - Thanks Lisa - Mary 14:19:51 02/23/03 (5)
    - Mary - Lisa 00:38:36 02/25/03 (1)
      - Thanks Lisa. - Mary 21:26:18 02/27/03 (0)
    - Tremors and headaches - DJ 15:29:31 02/23/03 (2)
      - Headaches.... - Mary 19:03:42 02/23/03 (1)
        
        Mary-headaches - Lisa 00:13:47 02/25/03 (0)
Hello everyone! - Elise 10:31:41 02/22/03 (7)
- Hello Elise! - Mary 19:21:43 02/22/03 (0)
- Elise and Sydney - Lisa 15:38:00 02/22/03 (4)
  - hi - Elise 10:01:35 02/23/03 (3)
    - Elise we were in Boston also. - Mary 11:09:39 02/23/03 (2)
      - Aspirin and angiogram - Annica Bennhult 12:32:15 02/28/03 (1)
        
        Asprin... - Mary 07:22:30 03/01/03 (0)
- Welcome Elise Sydney! - DJ 11:33:16 02/22/03 (0)
A story of my aunt who had moyamoya - Melinda Hall 02:52:19 02/21/03 (7)
- Melinda - Lisa 15:49:05 02/22/03 (4)
  - Running in families... - Marlene 21:59:16 02/22/03 (3)
    - ??? In families - Mary 22:27:29 02/22/03 (2)
      - moyamoya - Elaine Calvert 19:09:09 03/16/03 (0)
      - Great idea Mary! - Marlene 23:28:32 02/22/03 (0)
- Hi Melinda - DJ 07:57:39 02/21/03 (1)
  - Melinda... - Marlene 09:29:46 02/21/03 (0)
Good point Mary! - DJ 20:21:22 02/19/03 (0)
Alright, here's an easier question... - DJ 00:00:58 02/19/03 (4)
- Problems? - Lisa 02:44:32 02/21/03 (1)
  - I'm working on it... - DJ 07:48:53 02/21/03 (0)
- Now I know ...... - Mary 13:26:15 02/19/03 (0)
- answer.... - Mary 13:21:40 02/19/03 (0)
Ok, Here's some questions.... - DJ 00:43:02 02/18/03 (1)
- Q A - Lisa 02:39:42 02/21/03 (0)
Denmark - Flemming 07:07:20 02/17/03 (0)
Arrows on menu - DJ 13:08:29 02/16/03 (0)
moyamoya - Elaine Calvert 10:41:03 02/16/03 (1)
- Hi Elaine - DJ 10:54:19 02/16/03 (0)
Great idea DJ! - Tricia 22:34:28 02/15/03 (1)
- Thanks Tricia! - DJ 01:23:35 02/16/03 (0)
Can someone post a message? - DJ 14:48:12 02/15/03 (1)
- Hello??? - DJ 18:39:37 02/15/03 (0)
Welcome to our NEW Message Board! - DJ 14:05:47 02/15/03 (0)

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