Posted by Shannon Sawyer on April 24, 2003 at 22:06:52:
Hi everyone! I am writing this for a friend who does not have internet service. Her daughter was diagnosed with MoyaMoya a several months ago. Please excuse my ignorance on this subject as I have just started trying to get information for her. I thought if she could know that there are others out there it would somehow help. Her daughter, Grace, is two years old and has had the operation in Boston. If anyone could share their experiences with a young child with Moyamoya or experiences with the syrgery. I would love to print them and give them to her for support.
I would also like to be able to ask you guys questions on her behalf if you wouldn't mind. Thank you so much.