Posted by Douglas Veronesi on March 21, 2003 at 11:45:44:
In Reply to: Tyler Update posted by Rena on March 21, 2003 at 11:15:19:
Rena,
Keep pushing for the surgery. Ask Doctor Scott when he can do the surgery. We have to wait just over a month for the surgery. We are going to Doctor Scott. We live in Massachusetts than God. If you email him he will reply. Phone tag is too aggrevating. Don't ever feel bad about being pushy. We have a phone call into Dr. Scott right now. We are telling him that Hannah is now very very very tired, and goes to bed 1 & 1/2 hours earlier than normal as she can't keep her eyes open. Any change in their behavior to me should be reported. We also asked that if any surgery was cancelled that we be brought in, and they agreed. It is so frustrating, and it seems no one is helping. I am going through it right now just as you are. My advice is call every day if you have to. Squeeky wheel gets the grease. Our children are worth our every efforts. I wish you and Tyler the very best. My prayers are with you all......