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Posted by Lisa on February 23, 2003 at 13:53:44:

In Reply to: DJ I read your story again........ posted by Mary on February 23, 2003 at 11:22:08:


Yes those tremors (trembling, tingling, numbness etc.) are all signs of an impending stroke. Maybe not that day or month but if something isn't done soon a stroke is sure to come. Luckily DJ (and myself now) recognized the signs after his first surgery and addressed the problem.

The problem is that people that haven't been diagnosed with MM yet don't know what the tremors are all about and may possibly ignore them. Or, in my case, I went from doctor to doctor about them and was either brushed off or even misdiagnosed (they told me I had begginings of MS a few years ago). If I hadn't pushed myself, gone to more doctors, I probably would have had a massive stroke or even dead by now. I don't really blame all those doctors that misdiagnosed me. Really who would have imagined Moya Moya! And, there are so many other diseases and problems that may give you the tremors. I imagine it would be soooo very difficult having a child with all this stuff because they can't communicate about their symptoms as well as an adult can and you, as a parent, feel very helpless and confused. You parents of children with MM have my admiration!

I am getting a lot of tingling/numbness/tremors on my left side now which probably means that I will soon have to have surgery on my right side. The thing that bothers me a bit is that I still have it a little on my right side and I already had the surgery on my left. I am going for my post-op angiogram on March 4 and I am anxious to know what is going on up there. I really don't feel up to another surgery right now though so I hope that the progression isn't that bad yet.

I hope everyone is having a great weekend!

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