Posted by Marlene on February 26, 2003 at 02:40:09:
In Reply to: 9 year old daughter with moyamoya posted by Kim Veronesi on February 25, 2003 at 19:31:31:
Hi Kim--I'm sorry to hear your daughter has moyamoya, but I'm glad you came to this site with your questions. You'll talk with some wonderful, compassionate people that have no other thought but to help you in any way they can. I don't have moyamoya, but my neice Mandy does. This site has been a God sent to our family! DJ, the moderator of this site, helped, guided, and comforted us through some scary times, along with some other beautiful people, who went through exactly what you are going through now. I call them angels.
From what I've learned thus far, your daughter is very fortunate to be diagnosed this early before any other other symptoms occur. This is a rare disease that is many times, misdiagnosed. You're doing the right thing. Your Doctor is one of the best in the country. She's in good hands, just wait until you hear some touching and successful stories. They'll be there for you...I know because they helped us through alot.
Hannah will be in our thoughts and prayers. Please keep us informed as to her progress.
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