Hi Kim!

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Posted by DJ on February 26, 2003 at 00:33:46:

In Reply to: 9 year old daughter with moyamoya posted by Kim Veronesi on February 25, 2003 at 19:31:31:

Sorry to hear you needed to find us, but glad we are able to be here for you and your daughter!

Glad to hear your daughter is seeing Dr. Scott!

I've had surgeries on both sides and it's not as bad as it sounds (not for me anyway). I'm sure it was alot worse for my family waiting in the waiting room.

I came through both surgeries with flying colors and had no pain either time.

Surgery is not to correct any damage already created from stroke, but it should prevent any further damage/stroke.

As for me, it didn't correct the damage from the stroke I had before my first surgery, but it prevented any further damage.

I lost feeling in three of my fingers from a stroke on the right side of my brain before I was diagnosed with moyamoya but haven't had any more damage since the surgery over a year ago.

At the time, the left side of my brain had much better blood flow and didn't require surgery.

It took 15 months for the left side of my brain to "catch up", but it finally did this December. Started having the same stroke symptoms and had the surgery on the right before I suffered any permanent damage.

I've been stroke and damage free on both sides since my surgeries but still have not re-gained the damage from the original stroke on the right side.

Bottom line is this...

Surgery didn't FIX the damage from the right side stroke, but it kept it from getting worse.

Surgery STOPPED any permanent damage on the left side because I had the surgery done before any permanent damage was done.

Theory is... once the blood flow in the brain is corrected, the moyamoya vesseles, which cause the problem, disappear and go away.

Make sense?

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