Posted by Shana Turner on May 04, 2003 at 11:10:17:
In Reply to: Our 3 year old daughter Allyssa will have surgery May 16th posted by Annette on April 26, 2003 at 15:58:02:
It sounds like your daughter is very lucky to be in a family with so much strength and courage and was able to be around doctors who were aware of this horrible disease. Our family will pray for your daughter and your family and you'll be in our thoughts.
Please share your experiances with us...my husband past away from moyamoya about 7 months ago but was not diagnosed with it until his autopsy. However, now I am concern for our 3 daughters ages 14, 6, and 2. Did any of your doctors express concern for your other children, have you heard if it's hereditary? What warning signs did you notice with your daughter that I could watch for.
Please stay in touch and let us know her progress.
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