Posted by Helen Rivera on April 28, 2003 at 12:29:18:
I have a sister with this rare disease,she is only 29 years old. She is having surgery in May. I am scared she will not make it. If you could help me with some information on doctor's who perform surgery for this kind of disease please write me at 6423 S. Woodlawn St. Chicago, Il 60637 or call at 77-684-9046.
Thank you Thank you for any support.
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