Posted by Mary on April 16, 2003 at 16:54:41:
In Reply to: me and my familey posted by richard spicer on April 15, 2003 at 17:45:58:
Richard, So sorry to hear that you have this disease, BUT happy that you have a diagnosis.It really concers me about the heredity question. I feel very strongly that Doctors will find a much bigger underlying vascular problem which causes this disease.Also that it is in many instances hereditary. My family background is SO full of neurovascular medical problems that it seems way too coincidental.My daughter was diagnosed at 5 yrs old.She is doing well after haveing had 5 strokes and 2 surgeries.I just hope that research will not take too long.I will never take for granted any small signs that could pop up in my other 2 children.I am finding so many more people with more than one in the family with this disease, and given how rare it is it doesn't seem like it could be "coincidence". I would love to hear other opinions on this. Good luck Richard!! This is a great place to get support and info.
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