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Posted by Lisa on February 22, 2003 at 15:49:05:

In Reply to: A story of my aunt who had moyamoya posted by Melinda Hall on February 21, 2003 at 02:52:19:

All I can say is Thank God for modern medicine! I mean it is hard enough now to find information and get help with Moya Moya but your poor aunt went through hell! At least you know what to look for now if you start experiencing anything weird.

You bring up an interesting thought though about Moya Moya running in families. I have read that they "think" it could but it's just a theory so far. I have contacted practically every relation I know trying to go back and find if anyone died of unknown brain things or had strokes at young ages etc. but have so far found nothing. Guess I just got lucky?! Has anyone here with MM found anything in their families?

Another question I have had lately but haven't asked my docs about is... if you have Moya Moya how okay is it to have children of your own? Not just for my own safety but how likely would it be that my child would then be born with or get Moya Moya? Anyone know?

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