tammy66
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I Love MM.com!
Posts: 24
pittsburgh,pa
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Hi Katie, I read the article and your story was very touching. I will pray for you and your surgery. I work with insurance companies and I think it is terrible how they run our medical issues and how it seems they have all the power. You did a great thing by having your story out there. I pray your surgery goes well and you get back to your life. My daughter had bilateral pial synangiosis in March, 2010 at Boston Childrens Hospital for MoyaMoya. She was diagnosed in October, 2009. She was having headaches, had focal seizures as a baby, passed out 3 times and started seeing spots which lead us to the diagnosis. She is 8 years old. She is doing fine now, she still gets tired, some headaches, but not as many and I worry about her everyday. She will get a MRI/MRA in a couple of montsh for follow up with the surgery and angiogram in a year. We have blue cross insurance, but we still have a bill that we are responsible for and we send a little bit of money every month, which we are now on a payment plan with the billing department. They were actually pretty good with working with us - I think as long as they get their money. I know ther is medical assistance that is out there, you can apply for disability, get turned down and then Medical assistance should pick you up. Talk to a social worker and they can also assist you with anything you would need. You are brave and sound like a really nice person, let us know how everything goes. Stay strong! Tammy- Amanda's mom.
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