Michele
Experienced Poster
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I love YaBB 1G - SP1!
Posts: 169
Yankton, USA, SD, South_Dakota
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I hope you all get the NORD newsletter! They are trying to get a few of the rare diseases put on a list so ppl w/ them don't have to wait to get approved for disability because the ppl on the other end don't know anything about the disease. At this time, I have heard several ppl here mention sending letters to Oprah, etc, to get the word out. I would like to say that I believe we should all be sending letters to social security (disability) to lobby them! Even for those that have been able to return to work, how long does it take after surgery to recover? By the time we could get approved for disability, we all probably could have recovered from surgery. I believe anyone dx with MM should be automatically approved for short term disability, with medical benefits. Surgery seems to be the only method for successful treatment and it takes time to recover from that! Also, there are medication expenses, etc after surgery, even IF your regular insurance WOULD pick you back up. Why should some of us have to wait for that next stroke that DOES completely disable us before we are approved for benefits???? Or until that next anuerysm breaks, etc. With the new administration coming in, I urge all of you to start sending letters to Social Security as well as Tom Daschle, head of HHS and start lobbying for our cause! Don't underestimate the power of lobbying, even if we aren't an organized lobbyist organization...the pork barrel will roll, (it always does) lets get it rolling in our direction! God Bless You All, Michele
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