my daughter went through the first one last week and has bounced back pretty good so far, but i know she is dreading this week, she had a hard time getting to sleep tonight because she is worried about the next surgery and what people will think about her.

i try to comfort her and talk her through things, and remind her of how brave she is being, and that its ok to be scared and nervous, and that i'll answer any questions she has, but thats where she leaves it.  she looks in the mirror now and at first she was saying she looked weird, and i kept telling her that she didn't, her hair will grow back, the scars will fade, and that she is beautiful and always will be....

then her mood changes and she starts talking about what she wants to bring to the hospital this time, and what we should do while we are there.

Its hard sometimes to watch her, she wants so much to go ride her bike and play with her friends next door, but knows that she can't right now, and it frustrates her at times.

we leave tomorrow for the second surgery that is on wed, so i will update you all as soon as i can, we have been thinking about you all, and have just taken a few days at home to settle down a bit, and relax.

talk to you soon
Hillary

Hi Hillary,

So glad to hear that Holly is doing so well after her first surgery. Now, to get through this one. Bless her heart, she's been a trooper and has been through alot. Can't say that I blame her for her apprehention, don't know that I'd be as brave. I do know that she's got he greatest love and support from you mom, and (IMO) the best doctor and staff in the world and after this needed second surgery, she'll be back to a normal healthy, long life. Hang in there guys!! You're in our continued thoughts and prayers. Anxiously waiting to hear from ya!

God bless,
Mar

Hillary,
Tyler wouldn't even look in a mirror the first few days after either surgery, Then when he did catch a glimps of him self he said he was scary looking. That all is distant memories now.
Let Holly know it will all be over soon and she will be out playing once again.
How are you holding up? I know the stress on the parent can get rough.
You and Holly are in my prayers.

Thanks so much for the update.Many many prayers will follow you through this next surgery.Luckily you don't have a long wait......
Mary Grace