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hillary

Senior Poster

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My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female

surgery this week (holly)
May 16^th, 2004 at 11:55pm

tuesday is the first of her surgeries, boy are we nervous now, and we would appreciate all your prayers, i will be with her all week and will update when we get home.

thanks to everyone for all the support that you all have given, DJ, thanks so much for the website, and for giving us so many people to talk to that care and understand, i would be lost without you all

Hillary and family

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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: surgery this week (holly) Reply #1 - May 17^th, 2004 at 1:17am Hillary, Everyone here will be thinking and praying for you and Holly this week! You and your daughter are at the best possible place you can be right now! Hang in there and we're all pulling for you! Let us know how it goes when you can. DJ
Back to top	Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle! IP Logged

PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: surgery this week (holly) Reply #2 - May 17^th, 2004 at 6:07am Hillary and HOlly---we are all here praying for you---any praying without ceasing......keep us posted.....All our love to you, Pat
Back to top	"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up...... IP Logged

joesmom New Poster Offline MY SON HAS MM Posts: 21 BELFAST, United_Kingdom, europe, 149, 190 Gender:	Re: surgery this week (holly) Reply #3 - May 17^th, 2004 at 7:19am Hi Hillary My husband and i will be thinking of you, i'm sure you are nervous but everything will be fine. We are still waiting for a date for Joes surgery so i sort of know how you're feeling right now. Keep us posted Love Michele
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: surgery this week (holly) Reply #4 - May 17^th, 2004 at 7:24am Hillary and Holly, You will be fine you are most definately in the best place you can be I think you'll be surprised at how well she does. Our thoughts and prayers are with you. Good Luck... until your next post. Nancy
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: surgery this week (holly) Reply #5 - May 17^th, 2004 at 9:59am Many,many prayers for the strength you will all need to get throught this.(((HUGS))) Mary Grace
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Mar

Ex Member

Re: surgery this week (holly)
Reply #6 - May 17^th, 2004 at 2:20pm

Hillary,

Please give her a big hug for us and know that you all will be in our thoughts and prayers. I'm sure this will be the beginning of a whole new wonderful life and another success story. You've got your precious little girl in the hands of the best doctor in the world!!

They also have a place there at Stanford where you can get on the computer and keep us posted as to how the first one goes. Please let us know as soon as you can.

Have a safe trip...

God bless,
Mar

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ariannasmommy Experienced Poster Offline ^i^Angel Arianna^i^ Posts: 178 Herrin, USA, usa, 361, 171, IL, Illinois Gender:	Re: surgery this week (holly) Reply #7 - May 18^th, 2004 at 12:59am Big hugs to you. Will be thinking of you and praying til we hear good news. Best wishes!
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PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: surgery this week (holly) Reply #8 - May 18^th, 2004 at 12:10pm Still praying, Hillary and Holly.......God is always with us, even when we don't know what to do.....Love, P
Back to top	"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up...... IP Logged

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hillary

Senior Poster

Offline

My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female

Re: surgery this week (holly)
Reply #9 - May 19^th, 2004 at 11:46am

Holly did well through surgery, it took a few hours longer then what they thought, but she had a somewhat stable night in ICU and should be transfered around lunch time to another room. She refuses to drink right now and is wanting to go home, but very awake and alert at what is going on. Linda and Jack were here with us waiting and then again when Dr. Steinberg came out and told us how things went, Thank you to them for being here with us!! It was a great help. Thanks for all your prayers, and i'll update again when i can.

Hillary and family

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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: surgery this week (holly) Reply #10 - May 19^th, 2004 at 11:55am Hillary, Thats great news! I knew she would do well, we couldn't be happier to here the news. Hand in there and keep us posted. Nancy ;
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: surgery this week (holly) Reply #11 - May 19^th, 2004 at 4:06pm Hillary - That's wonderful news! Chalk another one up for the successes!! Wishing Holly a speedy recovery! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

jaredsis2 New Poster Offline Posts: 31 brooklyn, USA, usa, 488, 138, NY, New_York Gender:	Re: surgery this week (holly) Reply #12 - May 19^th, 2004 at 8:07pm hillary i am so happy to hear holly is doing well we will keep praying for her speedy recovery god bless donna
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hillary

Senior Poster

Offline

My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female

Re: surgery this week (holly)
Reply #13 - May 20^th, 2004 at 4:30pm

Holly had a minor setback today, we went for a walk and ended up with a really bad tummy ache, but then she had some tingling going on in her face and hand so they started her back on the IV again today, they don't think she is getting enough fluids, so the possibility of coming home tomorrow doesn't look so good right now, but she has good color, and good spirits and sleeping soundly at the moment. Hopefully things will turn back around and she'll start drinking more on her own. All of the other IV's have been removed and she is off of the BP medication now so thats pretty good, she isn't having much pain at all in her head area, just had morphine a couple of times since the surgery.

Hope this finds you all well and we'll talk to you tomorrow.

Hillary

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Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: surgery this week (holly) Reply #14 - May 20^th, 2004 at 5:58pm Wow sounds like she's doing Great! I'll keep the whole family in my prayers.
Back to top	I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&& IP Logged

STrantas

MM.com Benefactor

Offline

MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: surgery this week (holly)
Reply #15 - May 20^th, 2004 at 7:25pm

hillary wrote on May 20^th, 2004 at 4:30pm:

ended up with a really bad tummy ache, but then she had some tingling going on in her face and hand so they started her back on the IV again today, they don't think she is getting enough fluids

Hillary - Tell her to drink up!!! I constantly have a bottle of water in my hand since my surgery - it does wonders! By the way, the morpine made me sick to my stomach as well Smiley

. I feel for her! Holly, keep up the good work!

-Shari

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: surgery this week (holly) Reply #16 - May 20^th, 2004 at 9:11pm Hillary, My daughter Mandy told me to Holly hang in there, if you knew her and her state of mind you would laugh. She also threw up after surgery thats why she said that, I hope the tingling stops, she should be o.k. I feel it. Good Luck and keep us posted. We're still praying. Nancy and Mandy
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hillary

Senior Poster

Offline

My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female

Re: surgery this week (holly)
Reply #17 - May 21^st, 2004 at 5:27pm

Holly says hi to everyone, she is doing much better today and is coming home tomorrow morning!! yayyyy!! she is very excited and has been up and moving around alot today, very little swelling, and brusing. good appetite and drinking a whole lot more. She went to the hospital school today and did some arts and crafts with the others and wasn't to shy about the bandage on her head, that is getting easier for her.

I'm very proud of how she is doing. we snuggle and lay in her bed together at night and watch a little tv before she goes to sleep so she enjoys that.

take care everyone and i'll talk to you all soon
Hillary

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