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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	NEW Moyamoya Video! May 7^th, 2004 at 5:42am For those of you with high speed connections, this link will probably work the best.... For those of you with dial-up connections, I hope it works ok... We're making a difference! Click the link below for brand new video about Moyamoya! http://www.stanfordhospital.com/media/winMedia/wmmKrontvNeuroMoyamoya.html 8)
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Mar

Ex Member

Re: NEW Moyamoya Video!
Reply #1 - May 7^th, 2004 at 7:14am

OMG Deej... That video was outstanding!!!! I cried through the whole thing. This information here has got to be the first of it's kind to moyamoya victims and their families and it's getting out there, thanks to you! I'm so excited! This website is saving lives and making a difference. Smiley

God bless Stanford, Dr. Steinberg and you Deej. Wow, my heart is pounding.

Thank you Deej!

Love,
Mar

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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: NEW Moyamoya Video! Reply #2 - May 7^th, 2004 at 8:27am Deej, What can you say! He's the man the video was great if for some reason it only educates 2 people it was worth it like Mar said its getting the word out for the first time in video from a proffesional. You never stops amazing me. Nancy
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: NEW Moyamoya Video! Reply #3 - May 7^th, 2004 at 9:09am All I can say is - Amazing! I'm glad this is there and moya moya is getting more noticed. -Shari
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Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: NEW Moyamoya Video! Reply #4 - May 7^th, 2004 at 1:14pm Couldn't see the video, but I could hear the story great. This is just what everyone needs. Getting the info out finally.
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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: NEW Moyamoya Video! Reply #5 - May 7^th, 2004 at 8:53pm Quote: I cried through the whole thing. Me too Mar, me too! ;
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ariannasmommy Experienced Poster Offline ^i^Angel Arianna^i^ Posts: 178 Herrin, USA, usa, 361, 171, IL, Illinois Gender:	Re: NEW Moyamoya Video! Reply #6 - May 7^th, 2004 at 11:57pm Can't bring myself to watch the video yet. But thanks for putting it here.
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Roni Junior Poster Offline I love YaBB 1G - SP1! Posts: 52 Dillon, USA, usa, 195, 162, CO, Colorado Gender:	Re: NEW Moyamoya Video! Reply #7 - May 10^th, 2004 at 3:03pm Only able to get the sound on the video. Interesting to hear both women had children who were tested for Moyamoya. Anyone know what type of test is involved or where it is available? Thanks, Roni
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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: NEW Moyamoya Video! Reply #8 - May 10^th, 2004 at 3:07pm Roni wrote on May 10^th, 2004 at 3:03pm: Only able to get the sound on the video. Interesting to hear both women had children who were tested for Moyamoya. Anyone know what type of test is involved or where it is available? Thanks, Roni Roni, my understanding is that the children had angiograms done to rule out moyamoya.
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Roni Junior Poster Offline I love YaBB 1G - SP1! Posts: 52 Dillon, USA, usa, 195, 162, CO, Colorado Gender:	Re: NEW Moyamoya Video! Reply #9 - May 10^th, 2004 at 3:22pm Hi DJ, Thanks for your prompt reply. Sorry to hear there isn't something less risky than an angiogram to check non-symptomatic kids for MM. An MRI & MRA is trauma enough. Wouldn't a DNA test be a great breakthrough? We can hope it's not too far off. Best, Roni
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