Posted by Suzanne on October 22, 2003 at 09:45:17:
Our son, Alan, who has had Moya Moya for 18 years, has developed constant virtigo and/or nausea. This has been going on for 4 months now. As he was a baby (7 months) when he first had problems and 18 months old at the the time of surgery he is unable to say if these symptoms are like anything he has had before. Has anyone experienced these symptoms? We are trying to work out if they have anything to do with the Moya Moya or if they are unrelated. We moved to Sydney, Australia (where the Olympic games were in 2000) from Melbourne, Australia 4 years ago, and in so doing left behind an incredibly suportive Medical team that knew and understood Alan's case as he grew up with them. We now face the frustration of seeing doctors that appear to know less about Moya Moya than we do. That, I am sure, is familiar territory. We would appreciate any help you can give us.
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