Posted by Yvonne on September 26, 2003 at 03:57:49:
Hi,
Hope all is well with all of you. My name is Yvonne Wang,31 Chinese female from S'pore. Dr diagnosed me with this rare and no cure Moyamoya disease in early September. Since then my life has been turn up side down, I knew my life will never the same after I discharged from Singapore General Hospital. I have done all the required test such ac CT, MRI and finally angiographies confirmed the progressive narrowing of my arteries. I am yet to get the detail reports from Dr. Is there anyone who can help as I am seeking for 2nd opinion but as mentioned with limited resources here which I am pretty sure I can get it locally, is there anyone can help if I can get all my reports and films scan and send it to any recommended Dr via email? Or do anyone of you know some one with this disease here in S'pore
Ps: Alternatively can be reach at yvonne.wang@pils-online.com also. Would be most grateful if anyone can help to email me both of my addreses
Yvonne