Posted by Becky Nichols on August 03, 2003 at 08:08:11:
Dear Patrick and family,
I know first hand what it is like to be told you have a rare disease and feel alone, but then we found a support group like this and found that there are people out there who are feeling what you are feeling. My heart is with you. Lean on your family that is why we are here. your always in my thoughts and prayers.