Posted by Douglas Veronesi on March 19, 2003 at 19:40:58:
In Reply to: My 11-year-old Tyler posted by Rena on March 13, 2003 at 12:14:20:
My daughter was just diagnosed with moyamoya this month too. I know what you are going through. This web page will help you out and support you through a rough time. It has helped us out too. Check out their links page too for more information. I wish you the very best. My prayers are with you. Also don't be afraid to ask any questions, or even to be pushy. This is how we found out it was moyamoya. If we listened to her pediatrition then it was just nerves, and tension that a child her age (9) goes through. As a parent we knew something was definately wrong. Sure enough we were right. This often gets misdiagnosed. We were lucky it got caught in the early stages. Once again my prayers are with you, and Tyler.